People are Amazing.....

          So tonight a Bowl-A-Thon was coordinated by citizens of this small town that we live in.....it was 5pm to 7pm and half the proceeds go to a Perthes fund that would help Cayden and other children with Perthes as well......I cannot explain how grateful we are that people of this community came and donated,hung out and had an all around good time....NOW we can build his wheelchair ramp that he so desperately needs.
          Cayden bowled and had such a good time...but with the good time came the pain...by 10:00pm he was in so much pain he couldn't stop crying....he still insisted that he had a good time and would do it all over again!....This little boy has more physical strength than most adults ever dreamed of having.....and through the pain and agony he still finds that strength to push on....HE is my hero....
            AS a mother I wish I could take all his pain and suffering away....I wish he could run and play like most kids his age...or go to sleep and stay asleep pain free....I pray every night that the lord will give him relief....they say there is power in prayer...and prayer is all we have left!

UPDATE: June 14,2011.......

     Sorry it has been awhile Cayden is pretty much keeping me busy!......So to update everyone....Cayden went for a about three weeks with very little pain...He was actually playing like a 5 year old should....and then we were broad sided by extreme pain that kept him confined to the wheelchair for the better part of 3 days....we were up at all hours of the night....pain medicine every 4 hours and bathes at hours of the night I didn't know exsisted.....he would use an electric blanket to soothe the pain with the heat...it was a very long 3 days....It took alot out of all of us...
     June 14,2011- As I pushed him in his wheelchair down the long hall at OU Childrens University to the Orthopedic department all I could do was pray......Cayden had a good summer so far, but I knew those three days of pain were different than usual....we signed in and waited to be called back.....Finally what seemed forever the nurse came to the waiting room and called Cayden's name...the whole time I sat there I prayed we would receive good news...First thing we did was x-rays...then it was time for truths...the first thing the doctor said when he came into the room was does Cayden complain one or both hips hurt?...My stomach dropped..I knew exactly what that meant....Cayden said both my legs hurt and they are really tired all the time...the doctor checked his range of motion which is very impressive...and then pulled up the x-rays.....he went over the left one which continues to break down normally and then he pulled up the right hip x-ray....and there we seenimmediately what we were terrified of...Cayden now has Perthes in the right hip as well.
  When both hips are affected it is called bilateral perthes...which only occur in about 10-20% of all cases and normally diagnoses come months apart.....
   Cayden is a fighter and we will get through this together.....Perthes is LIFE altering not LIFE threatening! We will make it!